JMF Diagnostic Center for Primary Immunodeficiencies - Belgrade
About Jeffrey Modell Foundation
Vicki and Fred Modell established the Jeffrey Modell Foundation (JMF) in 1987, in memory of their son Jeffrey, who died at the age of fifteen, from complications of Primary Immunodeficiency (PI) - a genetic condition that is chronic, serious, and often fatal. JMF is a global nonprofit organization dedicated to early diagnosis, meaningful treatments and, ultimately, cures through research, physician education, public awareness, advocacy, patient support and newborn screening
JMF Primary Immunodeficiency Network constitutes a physician platform serving investigators, researchers, and other healthcare providers.
The patient platform will be for patients, family members and patient organizations.
Each platform is independent and protected, but both platforms will serve as a central resource to exchange ideas, provide updates, disseminate information on PI, and bring you breaking news.
There is also considerable information made available for the general public. Specifically, the platforms include:
- A message board to facilitate communication
- Disease specific survey results from JMF Centers worldwide
- Therapeutic protocols and best practices
- Latest developments in Newborn Screening
- Upcoming symposia and meetings
- Registries link
- Listings of specialized Referral and Diagnostic Centers and identification of disease-specific specialists worldwide
- Information on funding support and grant opportunities
- And Much More…
The sole mission of PIN is to serve both the physician and patient communities with an interactive platform, dedicated to research initiatives, innovative protocols, improved diagnosis, treatment, and quality of care. Patients will talk to Patients, and Physicians will talk to Physicians.
JMF Diagnostic Center for Primary Immunodeficiencies - Belgrade
International Patients Organization for Primary Immunodeficiencies
