IPOPI was formed following a meeting between Bob LeBien from the US and Dr Helen Chapel from the UK in a London hotel in 1988. In 1990 a meeting in Oxford, UK, of the then existing national patient organisations representing people with primary immunodeficiencies, decided that an international organisation could well benefit people with primary immunodeficiencies around the world. At that time, not so long ago, there were thirteen organisations. Since then, through meetings in Switzerland, Spain, Sweden, Greece, Germany, France, Hungary and The Netherlands, the number of member organisations has more than doubled.

Everything that IPOPI does is driven by its Strategic Plan. This plan is based on solid research with all stakeholders – national member organisations, clinicians, nursing staff, industry, regulators and funders, and is revised on a regular basis.




PID Leaflet



- IPOPI E news on http://www.ipopi.org/index.php?page=news i

- IPOPI Winter E news on http://www.ipopi.org/index.php?page=winter-2013

- World PI Week on http://www.worldpiweek.org/

Projects and activities: http://www.ipopi.org/index.php?page=strategic-plan

Publications: http://www.ipopi.org/index.php?page=leaflets

Links to Medical Information on PID

Pid Glossary

The Warning signs








JMF Diagnostic Center for Primary Immunodeficiencies - Belgrade

IPOPI 20th

International Patients Organization for Primary Immunodeficiencies


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